Putting your story and what you need from people on paper is not easy. Don’t rush it, and ask for second and third opinions from friends before you put it out there. You might find, as we did, that it’s actually easier for the initial message if your friends or family write it for you, from their perspective. While things were still very new and very raw, this felt like a slightly easier way to ask for the funds. For us, over time the narrative changed back to us but it was always a group effort.
When you do put pen to paper, try to stay as clear, honest and open as you can. Don’t be afraid to be vulnerable, but try to keep to the specifics as much as you can. Include details about the medical condition, the treatment you are seeking outside of the NHS, all the expenses and how much their help will make a difference to your life.