Before you click on any of these bits of information, please be aware that they do not represent official medical advice. Rather, these are pieces of information and discoveries that we found to be useful during our own personal experience, and that we wanted to collate into a database for others facing the same diagnosis. 

information and next steps

DOCTORS

SECOND OPINIONS

STANDARD OF CARE

No one on this planet, not even a GBM survivor can tell you with complete certainty that the treatments they had will work for anyone else – cancer is so complex. Research is lacking in the brain tumour department, it’s underfunded and needs much, much more attention. We were told that it’s rare, but it’s not. It’s rarer in younger people, but brain tumours are still the biggest killer of children and adults under 40 than any other cancer – more needs to be done to ensure that the survival rates increase. We wanted more than anything for Stuart to be part of the 5% that make it to five year survival, and we’re heartbroken that he didn’t. The information provided here forms part of Stuart's story, to show you how we tried to find his cancer’s Achilles heel and some of the things we learned along the way. There is so much mis-information online and it can get very overwhelming deciphering what is fact and what is someone peddling something dangerous.

I hope that there will be something here that might help you move forward, or sideways, or whichever direction you need to go in to make progress against the personal cancer you or your loved one is facing.

A note on the order: You may find it helpful to start at the beginning and read through in order, as you’ll find certain names popping up again and again. However, I’ve split things up into more manageable chunks, so feel free to scroll through until you find something that feels most relevant to your situation.

CLINICAL TRIALS - COMING SOON

ACT ABOVE & BEYOND

ACT FOR CANCER

life after

ivf

gbm

Want to know more?
There will be so much more in the diary - COMING SOON

diary